One of the best things you can do for yourself is join a support group. In my area, we don't have any local groups I can attend live. But there are several online.
In 3 more days, it will have been 9 months since I rushed John to the ER. A lot has happened in 9 months. Most of it has been non-stop crisis mode and a series of hospitals.
I try to be really picky about my sources and collections of links. If you need help with your own research, check out these collections for glioblastoma related research and news.
It's been nearly 8.5 months. And I'm still incredibly angry.
You're allowed to scream. You're allowed to cry. But you are never allowed to give up.
Communication and memory issues are usually the hallmark symptom that initially brings a GBM patient to the ER room where they finally find out they have glioblastoma. Sometimes these symptoms disappear after surgery and/or treatment, but often they plague GBM patients continuously in one way or another. Stroke, seizures and cancer all have a negative impact on functions of the brain.
There's no doubt about it, glioblastoma almost always affects a patient's memory. Especially short-term memory.
"Everything will be fine, you'll see." You know nothing about brain cancer, John Snow. Much less about glioblastoma.
I'm sorry to say that with glioblastoma, you can't wait around for your doctor or anyone else to educate you on everything fast enough. There's so much information to absorb and so many decisions have to be made quickly. You simply don't have time to wait on them to learn what you should be asking. … Continue reading You Need To Educate Yourself…
There's an incredible lack of support available to brain cancer patients and their caregivers as a whole, but especially for families dealing with Glioblastoma, the fastest, most aggressive cancer known.
It's raining silver, and my heart cries, For future moments stolen...